Tag: PANDAS Sucks
4 Books to Read: 12 Days of PANDAS Sucks
Welcome to Day 4 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
3 Wise Quotes: 12 Days of PANDAS Sucks
Welcome to Day 3 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version… Read More ›
Your Words: PANDAS Sucks Because….(#12)
Welcome to the 12th installment in an ongoing series: “Your Words: PANDAS Sucks because….” As I’ve always said, PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover…. Read More ›
Hello from the PANDAS Side
I know we’ve all probably heard the newest Adele song. Right this moment, the “Hello” YouTube video has 650,800,568 views…omg. Now, I’m not a huge Adele fan. She seems totally cool as a person (here’s proof), but I’m just not keen on her music. My heart belongs to Depeche Mode, and she’s just not my style. ANYWAY……. Read More ›
5 Year PANDAS-versary
Exactly five years ago today, November 18, 2010, my son, Jesse, received his first IVIG (Intravenous Immunoglobulin) to treat his PANDAS. Facebook reminded me of this 5 Year PANDAS-versary early this morning, but my brain already knew. I’ve had an uneasy feeling these past few days. Restless. Worried. A certain sadness. It must be the memories of… Read More ›
Your Words: PANDAS Sucks Because….(#11)
This is the 11th installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the… Read More ›
Your Words: PANDAS Sucks Because….(#10)
This is the 10th installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the world… Read More ›
I Like It Dirty
[Note: I found this blog article on my computer today. It was originally written on April 20, 2015 but never published. I have had a lot of life happening. But I edited/added a bit, and here it is now. 🙂 ] I like it dirty. My house! My house! I like MY HOUSE dirty! Here’s why. When I… Read More ›
Happy Mother’s Day!
Dear PANDAS/PANS Mom: Happy Mother’s Day! I wanted to send you a quick message. You are doing a great job! You are doing exactly what you need to be doing for your PANDAS/PANS child(ren)! You know what is best! Never doubt yourself! Your heart is beautiful! Your soul is brave! When you are scared, know… Read More ›
Your Words: PANDAS Sucks Because….(#9)
This is the ninth installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the world… Read More ›
I’m Back!
I’m Back! Hello Again. 🙂 It’s been a while since you’ve heard from me, but I’m pretty sure PANDAS STILL SUCKS! I had an unplanned hiatus that began back in November 2014 when I just. stopped. writing. Eek! Not the best thing for a Blogger. I had several ideas but maybe experienced a type of Writer’s Block. DAMMIT!!! In January and… Read More ›
Doctors Say the Most Ridiculous Things
Kids might say the Darnedest Things. But Doctors say the most Ridiculous Things when it comes to PANDAS/PANS. A few weeks ago, I posted the article “Your Pain Is Your Fault: What Doctors Say to Women” on the PANDAS Sucks Facebook Page. In response to that article, a fellow PANDAS Mom, Lisa M., said “We need to… Read More ›
Treats and Tricks of PANDAS/PANS
It’s Halloween. I’m reminded of this holiday 4 years ago (2010) when we finally had my son’s PANDAS diagnosis, but IVIG was still three weeks away. He had chosen to be a “Thunderstorm” for Trick-or-Treat. (Yes…a Thunderstorm…I love my kid’s imagination because it stretches mine! He was a Starry Night the next year. 🙂 ). I… Read More ›
Chop Wood, Carry Water
There is an old Zen proverb… Before Enlightenment: Chop wood, carry water. After Enlightenment: Chop wood, carry water. Yesterday was PANDAS/PANS Awareness Day…October 9, 2014. There was a flurry of activity all over social media. Posts. Tweets. Links. Articles. Letters. Videos. Stories. Proclamations to recognize the day in 22 states. Some folks were busy all… Read More ›
Happy Birthday PANDAS Sucks!
Happy Birthday to PANDAS Sucks! Today is October 9, 2014…and the second PANDAS/PANS Awareness Day. I launched this blog on October 9, 2013…the first PANDAS/PANS Awareness Day. I remember it like it was 365 days ago. But Happy PANDAS/PANS Awareness Day today. For this year’s PANDAS/PANS Awareness Day, there were 22 States (including my… Read More ›
Your Words: PANDAS Sucks Because….(#8)
This is the eighth installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the… Read More ›
Yeah, PANDAS Sucks
Sharing this picture with you. A good friend created it for me. (Thanks Keith! 🙂 ) NOTE: I don’t really hate panda bears…see this page for more info. Love, P.S. I’m making a call for submissions. Please send me the “MOST RIDICULOUS THINGS your doctor has said to you about PANDAS/PANS.” I’ve already put the call out for… Read More ›
Your Words: PANDAS Sucks Because….(#7)
This is the seventh installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the… Read More ›
Your Words: PANDAS Sucks Because….(#6)
This is the sixth installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the… Read More ›
Happy Father’s Day!
Happy Father’s Day! I had thought to do a special edition of my series “Your Words: PANDAS Sucks Because…” featuring responses from only PANDAS/Dads. I put the call out for the MEN to let their voices be heard. Can you here the crickets chirping? Uhhh…yeah. 🙂 That’s okay because last week I’d asked my husband… Read More ›
PANDAS Sucks 