Tag: PANDAS Sucks
PANDActionS…31 Actions for Awareness
PANDAS/PANS Awareness Day is October 9th. Every day in October, PANDAS Sucks will be posting an Action you can take for PANDAS/PANS Awareness OR PANDActionS. (I was soooo excited when I thought of that. haha). I’ve been working on more Advocacy and Action versus just Awareness this year. PEOPLE SHOULD ALREADY BE AWARE OF PANDAS/PANS…ESPECIALLY… Read More ›
Your Words: PANDAS Sucks Because….(#18)
It’s time to tell everyone how much PANDAS really sucks with the 18th installment of “Your Words: PANDAS Sucks Because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can… Read More ›
Your Words: PANDAS Sucks Because….(#17)
You are reading the 17th installment of the PANDAS Sucks series: “Your Words: PANDAS Sucks Because….” This is where we tell the world how much PANDAS SUCKS!!! And it does suck…bigtime. PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us…. Read More ›
PANDAS/PANS School Daze (2016)
PANDAS School Daze: PANDAS/PANS and School Days can leave you Dazed! It’s that time of year again. Time for SCHOOL, which is a 6-letter word that can elicit many 4-letter words from words from PANDAS/PANS Parents. Words like %#@$ and #^@* and especially @$*&!!! Ha ha! I wanted to highlight a really GREAT, NEW book… Read More ›
Being A PANDAS Mom
Last week, a PANDAS Guest Blog I wrote, “What It Means to Be a PANDAS Mom,” was published. Check it out if you missed it. In just seven days, the post has been shared over 3,000 times on Facebook. That many more folks now know about PANDAS/PANS! AWESOME! A big THANK YOU to my friends and family and all… Read More ›
3 PANDAS Wishes
Last week I made a wish on the PANDAS Sucks Facebook Page. I wished that everybody that needed help with PANDAS/PANS could just get help from their doctors. I decided to build on that first wish and make two more PANDAS Wishes. There are so many more PANDAS Wishes I could make, but genie’s… Read More ›
Your Words: PANDAS Sucks Because….(#16)
Welcome. This is the 16th installment in an ongoing series: “Your Words: PANDAS Sucks Because….” In these posts we vent and bitch and tell the world why PANDAS Sucks sooooo much. There are so many reasons that we will never run out of them. PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it… Read More ›
Your Words: PANDAS Sucks Because….(#15–School Edition)
Welcome to the 15th installment in an ongoing series: “Your Words: PANDAS Sucks Because….” This is when we list out all the reasons that PANDAS Sucks so the world can read about them. For this edition, some folks completed the sentence: “PANDAS Sucks At School Because….” So we have a mix of reasons that PANDAS Sucks…SUCKS,… Read More ›
If You’re Going Through Hell, Keep Going!
Sending a shout out to any PANDAS Parent that sees this message. I know I send out lighthearted calls from time to time asking you to share your reasons why you think PANDAS Sucks. I tell you to vent & gripe & bitch & that it is all anonymous. And then you respond…thank you!!!…and… Read More ›
Your Words: PANDAS Sucks Because….(#14)
Welcome to the 14th installment in an ongoing series: “Your Words: PANDAS Sucks because….” PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and recover. Let’s tell the… Read More ›
You Say No, And I Say Yes…to IVIG
This time three weeks ago, I was sitting in an Embassy Suites up in Chicago. My son Jesse had just received a third IVIG over the course of two days. I was playing on my smart phone in the front part of the hotel room. My husband was watching TV over in the bedroom. Jesse… Read More ›
Your Words: PANDAS Sucks Because….(#13)
Welcome to the 13th installment in an ongoing series: “Your Words: PANDAS Sucks because….” As you know by now, PANDAS Sucks exists to tell our collective story about PANDAS/PANS. How it affects our children. How it affects our families. How it affects us personally and changes us. How it affects everything. How we ALL can heal and… Read More ›
Send LOVE: PANDAS/PANS-GRAMS
It’s Back! Valentine’s Day Messages from PANDAS Sucks! ❤ In 2014, I let you send your LOVE to your PANDAS/PANS Kids via special Valentine’s. I had to skip it all last year due to an awful family emergency. But let’s do it again this year! Let’s send our kids Valentine’s Day PANDAS/PANS-GRAMS! 🙂 PANDAS Sucks to… Read More ›
12 Ways to Advocate All Year Long: 12 Days of PANDAS Sucks
Welcome to Day 12 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
11 Ways You Might Be A PANDAS/PANS Parent If….: 12 Days of PANDAS Sucks
Welcome to Day 11 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
10 Deep Breaths: 12 Days of PANDAS Sucks
Welcome to Day 10 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
9 Research Articles: 12 Days of PANDAS Sucks
Welcome to Day 9 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
8 Documentaries: 12 Days of PANDAS Sucks
Welcome to Day 8 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
6 Ways To Give To PANDAS: 12 Days of PANDAS Sucks
Welcome to Day 6 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the “12 Days of PANDAS Sucks” as a song, but I think you’ll still like it. LOL! However, I will be posting… Read More ›
5 Kickass Songs: 12 Days of PANDAS Sucks
Welcome to Day 5 of the “12 Days of PANDAS Sucks”! Every day from December 25 – January 5, you can expect to see a blog post from yours truly. You probably won’t be able to sing the days as a song, but I think you’ll still like it. LOL! However, I will be posting a different version of… Read More ›
PANDAS Sucks 